A Piece Of My Heart Foundation at a Glance
A Piece Of My Heart Foundation is a non-profit organization established in honor of our beloved daughter, Morgan Manning. Morgan went to Heaven on April 8, 2017. She had a rare heart condition called CPVT, however, she was living with it and doing well. We were totally devastated by her sudden death. We knew immediately that we wanted to commit the rest of our lives bringing awareness to Catecholaminergic Polymorphic Ventricular Tachycardia(CPVT), supporting other young people living with CPVT, and preventing other families from experiencing what we have.
In 30% of people with CPVT, sudden death is their first symptom
About 1 in 10,000 people in the U.S. has CPVT
About 30% of people with CPVT have symptoms before age 10
An exercise stress test and/or genetic testing is often needed to diagnose someone with CPVT
Know The Facts